Bridge the Gap – SYNGAP – Education and Research Foundation

Conference Registration is Open! Please Read All of the Disclosures on the registration website.

JUNE 22, 2019

8 AM – 5 PM

COURTYARD MARRIOTT EDINBURGH WEST

2 RESEARCH AVENUE SOUTH

EDINBURGH EH14 4BA

Our hotel room block is prepaid by the organization. There are limited rooms and nights available. It is first come first served. We will reserve hotel rooms only for those who have prepaid. No refunds and all sales are final.

Please register each individual including children attending. We need t-shirt sizes and a count for food.

Thank you so much and we look forward to seeing you there.

Please help us raise the needed donations to serve our European SYNGAP1 Families.

To Make Donations:

Just Giving Page..
https://www.justgiving.com/campaign/syngap1familymeetup

Direct to Account

******VERY IMPORTANT***** Please reference “UK Syngap Conference” when donating through Edinburgh’s Website. The University has an independent account specifically for our SYNGAP1 Patients.

Follow the link below and the best way to donate is into “bank option”

https://www.ed.ac.uk/donate

You can also make a donation in person at your bank, or by completing an online transfer (BACS).

Please email supporter@ed.ac.uk

All moneys received will ONLY used for UK Educational and Scientific Meetings and Research at Edinburgh University.

Edinburgh University is serving as a Fiscal Sponsor of Bridge the Gap – SYNGAP Education and Research Foundation

Confirmed Speakers

Dr. Mick Parker – Sheffield Hospital

Dr. Peter Kind – The Patrick Wilde Centre

Dr. Andrew Stanfield – The Patrick Wilde Centre

Dr. Chris Oliver – University of Birmingham

Mrs. Katy Kennedy – Bridge the Gap – SYNGAP ERF

Ms. Candace Lerman Esq. – Bridge the Gap – SYNGAP ERF

 

EDINBURGH CLINIC REGISTRATION

European SYNGAP1 Families!

If you are wanting to bring your child to Edinburgh for the research clinic. Please only sign up if you are for sure you can participate.

We MUST have a genetic report to confirm a SYNGAP1 mutation. If you do not have one, please start the process now to get one.

Please bring a laptop with you if at all possible.

Please note this ticket reserves your research spot for June 23, 2019. You must register and prepay for hotel accommodations on the Meetup Registration page. Hotel Blocked rooms are limited and are on a first come first served basis. Please keep your receipts for all registration transactions.

Edinburgh University will be reimbursing for travel expenses.

People bringing children to take part in the research project will be refunded ONE-night accommodation and reasonable travel costs for two adults and the child. Flights around the UK / Ireland are OK. Please double check with us for overseas flights, as this will be capped at a certain amount.

You will be notified of your appointment time before the conference. All purchases are final and no refunds will be given.

https://www.eventbrite.com/e/uk-syngap1-research-clinic-tic…

Password: SYNGAP1

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