Conference Registration Opens January 15, 2020! Please Read All of the Disclosures on the registration website.

JUNE 6, 2020

8 AM – 5 PM

Edinburgh University ~ Patrick Wilde Centre

Hotel Registrations will be paid in full by the participants.  There are limited rooms and nights available. It is first come first served. We will reserve hotel rooms only for those who have booked through Melanie Battye. No refunds and all sales are final.  If there is a no~show without the required cancelation notice, Bridge the Gap ~ Education and Research Foundation will invoice in full for the rooms.  The organization is holding the room block as a courtesy to allow SYNGAP1 Families to get the discounted rate.  

When registering, please include each individual including children attending the clinic. We need t-shirt sizes and a count for food.

Thank you so much and we look forward to seeing you there.

Please help us raise the needed donations to serve our European SYNGAP1 Families.

To Make Donations:

Just Giving Page..
https://www.justgiving.com/campaign/syngap1familymeetup

Direct to Account

******VERY IMPORTANT***** Please reference “UK Syngap Conference” when donating through Edinburgh’s Website. The University has an independent account specifically for our SYNGAP1 Patients.

Follow the link below and the best way to donate is into “bank option”

https://www.ed.ac.uk/donate

You can also make a donation in person at your bank, or by completing an online transfer (BACS).

Please email supporter@ed.ac.uk

All moneys received will ONLY used for UK Educational and Scientific Meetings and Research at Edinburgh University.

Edinburgh University is serving as a Fiscal Sponsor of Bridge the Gap – SYNGAP Education and Research Foundation

Confirmed Speakers

Melanie Battye – President BTG SYNGAP1 UK

Dr. Mick Parker – Sheffield Hospital

Leanne Armstrong – Independent Speech Therapy LTD

Dr. Peter Kind – The Patrick Wilde Centre

Dr. Andrew Stanfield – The Patrick Wilde Centre

Shaun Holroyd – SYNGAP1 Parent

Monica Weldon – President/CEO Bridge the Gap – SYNGAP ERF

 

EDINBURGH CLINIC REGISTRATION

European SYNGAP1 Families!  NEW PATIENTS ONLY

If you are wanting to bring your child to Edinburgh for the research clinic. Please only sign up if you are for sure you can participate.

We MUST have a genetic report to confirm an SYNGAP1 mutation. If you do not have one, please start the process now to get one.

Please bring a laptop with you if at all possible.

Please note this ticket reserves your research spot for June 7-8, 2020. You must register on the Meetup Registration page. Hotel Blocked rooms are limited and are on a first-come-first-served basis. Please keep your receipts for all registration transactions.

Edinburgh University will be reimbursed for travel expenses.  Conditions do apply.

People bringing children to take part in the research project will be refunded ONE-night accommodation and reasonable travel costs for one adult and the child. Flights around the UK / Ireland ONLY covered.

You will be notified of your appointment time before the conference. All purchases are final and no refunds will be given.

 

Home Office

15319 Redbud Berry Way Cypress, Texas 77433

(240) 347-0302

Regional Office

1012 14th Street NW Suite 500 Washington D.C. 20005

admin@bridgesyngap.org

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