Proud Partner of PALS ~ Patient Airlift Services
We are incredibly excited to partner with a great service for our US families. Bridge the Gap – SYNGAP ERF is now a corporate partner with Patient Airlift Services. Please check out their services. Our goal is to provide free flights to our SYNGAP1 Centers of Excellence within the United States to continue our mission of driving research. Please check out their website.
Please Note: They are unable to accommodate those having Grand Mal Seizures through the private aviation. This is because the pilot is a volunteer and there wouldn’t be any medical component to the flight. They also partner with JetBlue and Southwest on occasion when needed.
PALS website: http://www.palservices.org/
PALS intake form (which can be completed by the patient, caregiver, social worker or even you): https://palservices.force.com/form/s/patient
Annual report: https://issuu.com/palsflight/docs/pals_2017_annual_report
Outreach packet: https://issuu.com/palsflight/docs/outreachflipbook_021218
Brian Donor Project
This may be the most important and generous gift you ever give.
Neuroscientists have learned more about the human brain in the last 20 years than throughout all of recorded history. Genomic research has produced significant results and now there’s a critical need for donated post-mortem human brain tissue to advance science and work towards a cure for brain disorders.
Make arrangements to donate your brain for research—then talk about your decision with your family so they can ensure that your wishes are carried out.
SYNGAP1 Prenatal Screening
Customer Support: 650-249-9090
Panorama (NIPT) * Horizon (Carrier Screen) * Anora (POC) * Evercord (Cord Blood) * Vistara (A NIPT for Single Gene Disorders)
Resources listed on this page are not endorsements of the organization. Please do your due diligence when looking to engage in retaining for services. Please refer to our website usage policy.
Numotion is the leading provider of Complex Rehab Technology (CRT) in the United States. That means we’re helping thousands of people with individually configured, medically necessary mobility products and services. From manual and powered wheelchairs to disposable medical supplies that serve unique medical and functional needs, we are helping more people live more freely.
The vision of LifeVac came from a story that Arthur Lih, founder and CEO of LifeVac, heard of a woman in a hospital weeping following the death of her young son.The reason for his death was that a grape had become lodged in his windpipe and the Heimlich Maneuver did not work. Once he heard the story he set out to invent an apparatus that could clear an airway.
Arthur, Dr. Brody, and a few close friends set out to bring LifeVac to the public by establishing a research and development facility located in Springfield Gardens, NY where we are producing the upper airway clearing device in order to bring the safest, simplest method to save an aspirating person. Our goal is to save as many lives as possible throughout the world.
The Dechoker is a life saving device which can be used for choking first aid on anyone, regardless of age, illness, disorder or other health-related condition. The Dechoker comes in three sizes designed to help an adult, child, or toddler in the case of a choking emergency.
Vacation Activities for Special Needs
To provide a safe, clean and beautiful environment free of physical and economic barriers that all individuals – regardless of age, special need or disability – can come to and enjoy.
Autism on the Seas, an international organization, has been in collaboration with Royal Caribbean International since 2007 in developing cruise vacation services to accommodate adults and families living with children with Special Needs, including, but not limited to, Autism, Asperger Syndrome, Down Syndrome, Tourette Syndrome, Cerebral Palsy and all Cognitive, Intellectual and Developmental Disabilities. These services quickly expanded to other cruise lines.
The handicapped scuba diving alliance has dedicated itself to improving the physical and social well begin of people with disabilities through the sport of scuba diving.
A unique and effective therapy program provided by qualified therapists in cooperation with dolphins in an inviting Caribbean environment. Discover how it makes a real, positive difference in people’s lives.
Written by autistic author Robyn Steward, this is a detailed guide for young people aged 9 to 16 on the basics of menstruation. Created in consultation with young people, an online survey and a group of medical professionals, this is a book that teaches all people about periods, which can be a scary and overwhelming issue.