Registration fee of $35 includes educational materials, continental breakfast, boxed lunches, snacks and family meet up t-shirts.

BTG Foundation Family Members will receive a $10 Early Bird Discount Before September 15, 2019 on registration with Promo Code from BTG Family Newsletter sent out in August 2019.

Families will be required to provide their own caregiver. A room will be provided for childcare with activities for entertainment during the conference. Children will not be admitted to the conference area during the presentations.

Hotel blocked rooms are limited and are on a first-come-first-served basis. If rooms become full, the participant will be required to arrange their own hotel accommodations.

SYNGAP Family Meet-Up Room Block: 

Start date: 11/7/19
End date: 11/9/19
Last day to book: 10/07/19

Bed availability information:
Standard Bed $159/night

Book your group rate for SYNGAP Family Meet-Up Room Block at the following link:

SYNGAP1 ROOM BLOCK – Reserve Your Hotel Room Here

Cut-off Date:  Monday, October 7, 2019, all unused rooms without a name to a reservation will be released after that date.

Room Rate: $159 per night plus taxes (if tax-exempt, please provide correspondent document)

Billing Method: Individuals to Pays on Own (Guest will need to provide a method of payment upon check-in for all charges)

Cancellation: 72 hours cancellation fee will apply to all the sleeping room.


Kennedy Kreiger COE Clinic Study will be on Friday, November 8

Appointments will be in the morning are there will be limited spots available.

Families bringing children to participate will need to call Local: +1 (443) 923-9400
707 N Broadway
Baltimore, MD 21205

Please bring SYNGAP1 Patient’s Genetic Report (required to participate in the study) and Laptop (if available)

There will be a playroom available during the conference.  Families bringing children must have a caregiver during the Saturday Conference. Children will not be admitted into the conference while in session.