Bridge the Gap – SYNGAP – Education and Research Foundation

Dance To The Best Of Your Own Drum

Ty was born on a stormy July 14th, 2015. He announced himself with a healthy, loud scream. Ty is our third child and by far the easiest baby. He slept through the night right away, nursed like a champ, loved hugs, and was always smiling.Around 4 months I noticed he was not interested in rolling over or looking at toys. He was just very content laying on his back and interacting with people.……..

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Finding a Place in the World

In April of 2010 our son Will was born. He was a big beautiful wiggly baby of 9 pounds even. I was so in love with Will’s older brother Colin, who had just turned 2 at the time, and we were really happy and excited to have a second little boy and a brother for Colin to bond with. My pregnancy was completely normal. …….

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A Perfectly Beautiful World

Claira Beth Brown was born on a gorgeous Sunday morning with the sweetest smile and the biggest blue eyes you have ever seen. Just like any typical family we were extremely happy and proud of our little baby girl.  When she was 3 months old the storm clouds started rolling in…….

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January 2017 Family Spotlight:"A Purpose Driven Life"

  Eleanor is our spunky, loving, and creative four year old. She was recently diagnosed with SYNGAP 1 at the end of this August, 2016, following the results of Whole Exome Sequencing through Children’s Hospital in St. Paul, MN. Eleanor was born a week overdue, with hip dysplasia and jaundice. Her first 4 months were spent in a hip harness, followed by a cranial cap for flat head. ……

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November 2015 Spotlight: The Durrett Family - Finding the Normal Button

Around age 2. We knew something was going on with our little Payton. She wasn’t talking as much as her sister. It took her almost 17 months to walk. We always called her our quiet child. During this time, we started looking into tests and procedures to uncover what’s going on with Payton……

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