To serve, educate and fund research for families coping with the effects of SYNGAP mutations.
WHO WE ARE
Bridge the Gap – Syngap ERF began in September of 2014. A group of parents of children living with SYNGAP1 mutations came together to begin a new journey. The common bond is one driven by a desire to raise awareness and search out treatments to improve quality of life for these inspiring individuals.
152 of 200 Registered 61.4%
150 Completed Surveys by
SYNGAP1 (MRD5) PATIENT REGISTRY ON THE NORD NATURAL HISTORY PLATFORM
REGISTRATION OPENS AUGUST 1, 2018
~An added young investigator workshop has been added with an award of 15K from the NINDS NIH. To be held November 26, 2018. ~Submissions for posters will open August 15
Our Board Member Candace Lerman and President/CEO have been nominated for a 2018 WegoHealth Award! We are thrilled to have incredible people advocating for our cause! To vote for their nominations check out the links. Monica Weldon ~ https://awards.wegohealth.com/nominees/7671 Candace Lerman ~ https://awards.wegohealth.com/nominees/12278